4 Month Update, Part1

Today is Nico's 4 month anniversary since he had his stem cells re-infused and started a new and better life. 

Here is what he wrote to put on the blog:

It's been 4months since the transplant, and here is what's been going on. 
My condition is still improving and I've not had any complications. The first thing
I noticed almost right away was that I no longer am so heat sensitive (intolerant to warmer temperature, no more cold showers).:) 
l just stopped going to PT, but I continue exercising at home. I have been working out for
about 45 min at home almost every day. I have been going on a 1/4mile walk a couple
times a week with the aid of a walker or 1 forearm crutch. This is something I would
not have had energy or strength for before HSCT. 
I don't nap anymore in the middle of the day due to fatigue just from being awake (pass out at least a couple hours). 
I have also been able to sleep throughout the night and just feel a lot more awake and sharp during the day. 
I no longer deal with constipation all the time. My digestion is pretty regular now. I haven't used any stool softeners, which I used almost daily before. 
My legs still have their ups and downs, they still get pretty stiff on a regular basis, and don't
want to cooperate. They also start shaking pretty violently sometimes. This changes from one part of the day to the other. 
But even when things get worse it's still better than pre-transplant. There also are times
when I experience my legs working better, and I can walk around the house with
no crutch, no holding on to walls or furniture. I can even go up and down the
stairs at home now without problems. 
I had my first cold around Christmas time which was pretty brutal. I spent 3 days in bed and lost function in my legs, even my arms did not work so well. That was a real scary time. 
But things went back to normal a few days later. 
Then I just had a real bad cough that felt like it would never go away, until the new immune system did its job and I'm back to making positive progress. 

Hair is coming back

I will be writing another post to fill the gap between our last post and this update, so stay tuned....